The Angelman Rally T- Shirts!!

Hi everyone!

I am so thrilled to share our new The Angelman Rally T Shirts in association with the charity we are fundraising for, AngelmanUK.
In fact, 100% of your donation goes directly to the charity!!

All you need to do is visit the website, click on the T-shirt you like, complete the order form, and make your donation to get your T-shirt today!

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Welcome to Holland…

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

prof_0

Be a pineapple….

100-polyester-yummy-world-small-amy-pineapple-plush-1_2048x.jpgBe a pineapple,
Stand Tall,
Wear a crown,
and be sweet
on the inside.

I wanted to write this blog post to address a lot of questions that I have had asking why I add or talk about pineapples with a hashtag or an emoji, when posting about IVF and Infertility. 🍍
Within the trying to conceive (TTC) community, the pineapple has recently become a bit of a symbol of luck and friendship (which you need a ton of when doing IVF).

There is also a theory that pineapple core helps with implantation and you see a lot of people eating it during their two week wait after an IVF embryo transfer, I tried it too. I think I tried everything at one point. I mean, what harm will eating a pineapple do right?

27356480_1938880203032135_5873734906395405251_o.jpgThat leads me onto letting you know that IVF BABBLE are selling these cute little pineapple pin badges on amazon! With profits donated to the Fertility Network

Raise awareness this Crohn’s & Colitis Awareness Week with #IBDSuperHeroes!

I’m sure you’re all aware by now that Crohn’s & Colitis Awareness Week is almost here!

December 1st – 7th is the perfect opportunity to take to social media in a bid to educate the masses!

We have a few resources ready & waiting to help you in your awareness raising mission!

Firstly, the Crohn’s & Colitis Awareness WeekTwibbon which you can add to your social media profiles by clicking here!

Secondly, our Facebook header which you can find here!

We will be highlighting symptoms of IBD all week on the #IBDSuperHeroes blogFacebookTwitter,InstagramPinterest & Google+, so do look out for those & give them a share! We will also be sharing some of your IBD stories each day from the blog & would love to share your personal stories that you are sharing throughout the week on social media, so if you include the hashtag #1WeekOfIBD in your posts on any of the above social media platforms then we will find them (if they are public) & share them!

We would of course, love it if you would also include the hashtag #IBDSuperHeroes too 😉

Happy awareness raising!!

Lot’s of love,

#IBDSuperHeroes xoxox

Money raised by #IBDSuperHeroes is solely invested in to finding a cure for Inflammatory Bowel Disease.

We are fundraising on behalf Cure Crohn’s and Colitis who invest 100% of their donations to medical research throughout the UK. All members of the charity are unpaid volunteers and no administrative fees are recovered from donations.

You can donate via our JustGiving here OR by text using;

CCSH90 £3 to 70070.We may be sick, but that does not make us weak! In fact it makes us stronger! If you have a passion for raising funds and awareness for IBD then please do join us.

Together we are stronger.  Together we can fight harder.
Together – we CAN be HEROES!

My Belinda Hayle Eyebrow Tattoo’s

20151008_131429

I am excited to share my experiences of having my eyebrows tattooed with Belinda Hayle. I had them done in October 2015 and have been meaning to share this post for a while. lol
They call it ‘Semi permanent makeup’ because it is designed to be topped up so that in years to come when the shape of your face may change for example, that you can change the shape and keep it looking natural. They should follow the natural shape of your brows.

It took me a while to decide on the clinic that I wanted to use. I highly advice doing your research as i have seen some DIRE eyebrows! Far too thick and dark and completely un natural.
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Some tattoos turn blue cause of the quality of the products they are using. If anyone has read previous posts you will know that i suffer with image anxiety as it is, so the thought of being left with completely hideous eyebrows scared the crap out of me!
For this reason I chose a clinic who specialise in this type of permanent makeup. Not some tattoo place that ‘has done a few eyebrows too’.  I also did not want to go somewhere just because of a lower price or promotional deal. I believe with something like this you get what you pay for. I chose this clinic because they have been featured in the press, various celebrities use it and they have had fantastic reviews. I also went via word of mouth as I know someone who also used the clinic and was happy with the results.

I made my initial enquiry via email and was given a date for my consultation. The only downside was that it was a 2 month wait, and i presume this was because they are hugely popular. The nearer my appointment came, the more excited I was, and i knew that i was definitely going to get them done. So I called a few weeks before my consultation to see if i could book an appointment in advance to have the actual treatment as i didn’t want to wait another two months. Luckily they had a space a week after my consultation! 🙂

Post Consultation Prep: 
Well my natural hair colour is Ash Brown/Dark Blonde but I had been dying it for EVER… At least 20 years, to dark brown and sometimes black. With having my eye brows tattooed i was anxious about them choosing the wrong colour. Obviously they know what they are doing and choose a colour to suit your skin tone and not hair colour. I let my dyed hair fade and routes come through long enough and in time for my consultation. I felt better knowing that they had seen the real me lol

My initial consultation was with the company director, Belinda Hayle herself. The clinic is a purpose built building behind her home. She made me feel welcome and ran me through all I needed to know. I had pencilled my eyebrows to an inch of their life as usual, for the appointment so that they could see how i liked to shape my brows. I also made sure she saw my eyebrows without makeup so i used a wipe to take them off… by which time i felt completely naked!
They took 100 deposit and I left excited! I was a little disappointed to be booked in with one of her qualified technicians but Belinda herself cant be expected to work on her own, especially with the business being so popular and the clinic itself is a teaching academy.

What they say:

‘Permanent cosmetic eyebrow enhancement washes any worries away (not your eyebrows). A colour will be custom blended for you, and then I will take great care to design your new brow shape, using my special Arch Angel technique (exclusive to Belinda Hayle Aesthetics) and once you are happy, I will start infusing the colour with delicate hairstrokes into the upper layer of the skin. Discomfort is minimal, and most clients will have a well deserved snooze during the treatment. The whole process takes approximatley 1.5 hours, and you will leave with beautiful, coutured brows that will be the envy of your friends and family’.

The day of treatment:
20151008_131601 BEFORE (MY OWN EYEBROW MAKEUP)
20151008_131940MAKEUP OFF (hideous photo! lol)

STAGE 1:
20151008_13585320151008_135900
They anaesthetised my eyebrows. I can only describe it as It felt like the tattoo had started already as it was a scratching method. This was to open the skin/pores so that the anaesthetics would get in.
She then measured and drew the desired shape giving me more of a higher arch and adding shape to my flat eyebrows. She was very precise and got me to sit up as well as lay down and turn my face in various angles. I liked that she was being so thorough. Belinda came in just after she had finished and had a look. She gave her opinion and together they made a few further tweeks. I was happy to have her input before the tattoo begun.
20151008_15444320151008_154505
At first my eyebrows were darker (than now) and the area a little red. They told me they would lighten by 50% but to be honest i was pretty happy with the colour they were already. I thought that like a normal tattoo, it starts REALLY dark before scabbing, but I could see straight away the difference between the ink. I was given some vaseline type ointment to put on my eyebrows every three hours. I was also given instructions on how to maintain my brows and care for them in the leading weeks. I was not allowed to get them wet, and if i did i had to pat them dry and to smother them with a thick layer of vaseline when washing my hair or showering.
 20151008_15504820151008_180340

Day 2:
20151009_101226
There has been no obvious scabbing

I can honestly say this has changed my life. If i want heavier eyebrows i do still use makeup but on a day to day basis I don’t need to do anything.

I am due for a year top up so will let you know how that turns out

Corinne xx

#IBDSuperHeroes, ‘Give up a treat for a month fundraiser’

I will be giving up my soaps, which will please my fiancee immensely.
Find my JustGiving page here

You don’t need to be physically fit to raise some funds for a very
deserving cause – you can simply… give up a treat for a month!!

 
 
Starting on October 1st, we’re raising money for Cure Crohn’s and Colitis by asking people to sponsor us for giving up one of our
treats for a whole month and we are inviting you to do the same! We will also
be donating the money we’ve saved by not having this treat! Join the Facebook event here!
Instructions on how to make a Just Giving page to get sponsored
 
Instructions on how to join the #IBDSuperHeroes Just Giving team page so you’re total gets added to our grand total
 
100% of donations received by Cure Crohn’s and Colitis, are
invested in to medical research as ALL staff are voluntary!
So, what will you be giving up?!!

#IBDSuperHeroes launches ‘Your IBD Stories’ in celebration of World IBD Day!

I’m sure you’ve all heard by now that today, May 19th, is World IBD Day – a day for the WHOLE WORLD to raise funds and awareness of IBD and to celebrate the community of strong individuals battling Crohn’s Disease and Ulcerative Colitis.

Back in #IBDSuperHeroes HQ we’ve been working really hard to think of ways to raise the profile of Inflammatory Bowel Disease on this very special day. We’ve arranged dress up days, Twibbons, Thunderclaps, headers and profile pictures and last but by no means least are launching our ‘Your IBD Stories‘ section of the #IBDSuperHeroes blog!

We will be posting a few of your stories today and then drip feeding the rest at regular intervals. These will also be shared across our social media platforms.

If you would like to contribute with your IBD story, just follow the instructions below.

Fill in the following

Name: 
What year were you diagnosed and with
which form of IBD?
Have you identified anything that triggers you, and if so
what? 
Highlight an invisible symptom of Inflammatory Bowel Disease which you
feel affects you: 
Name one thing you feel like you’ve learnt or gained since
having Inflammatory Bowel Disease:
What makes you an #IBDSuperHero? (Tell us
what you’re proud of achieving or times you’ve been particularly strong when
you felt like crumbling etc)
 
Add links to your Twitter (we can tag you
when we post it), Instagram and Pinterest if you would them to be added and
don’t forget to attach a picture of you too!
 

 

Send your responses to
ibdsuperheroes@gmail.com with the subject ‘BLOG CONTRIBUTION’
 
I hope you enjoy our new blog section!

How you can support #IBDSuperHeroes on World IBD Day

Calling all Superheroes!!

You may have been wondering how YOU can get involved on Thursday May 19th for World IBD day. Well below are a few of the things you can do to show your support!

We asked you to distribute these posters and get as many friends, colleagues and schools involved is possible. Thank you to all that did this!

You can also JOIN OUR THUNDERCLAP and help get World IBD Day trending on May 19th! We’ve no doubt that some of you will be busy at work or recreationally so this will tweet or post on your Facebook /
Tumblr on your behalf on May 19th! You won’t even have to log in on
the day, just pledge your support on the above link now!

 

 

ADD OUR WORLD IBD DAY TWIBBON to your
profile pictures!
 
 
You can play a part in finding a cure for
Crohns and Colitis by donating now! Text CCSH90 £3 to 70070 or visit our
JustGiving page
All money is invested in to medical
research via Cure Crohn’s and Colitis!
 

Get yourself an #IBDSuperHeroes wristband!

 
Wristbands are available in adult and youth sizes;
Adult – 8 inches 
Youth – 7 inches
 
Wristbands are £2.00 each PLUS;
 
£1.00 for processing and postage in the UK
 
£2.75 for processing and postage outside of
the UK
You can order up to 5 bands before your
postage price increases.
ALL profits go to Cure Crohn’s and Colitis, the only UK charity to invest 100% of your donations into medical research and ultimately find a cure for Inflammatory Bowel Disease!

How
to order
 
Send a message including;
 
Your name
 
Full postal address
 
How many bands and of which size
Click HERE to place your order via Facebook inbox AND to receive payment instructions.
 
 
 
Thank you for supporting #IBDSuperHeroes!!

#IBDSuperHeroes Launch Event

Hey everyone!
I hope everyone is well.I wanted to start by saying a huge thank you for all the support publicly and privately since sharing my last blog

Since launching #IBDSuperHeroes we have raised over £350 for Cure Crohn’s Colitis so far, which is fantastic! Considering we haven’t started our fundraising events.
just giving
(click on the image above to take you to our JustGiving page)

This leads me to let you know that we have organised the first fundraiser which we are calling the project Launch event!

We would LOVE IT if you would join us on May 29th!


Come along, meet the team, me, Sahara Fleetwood-beresford, Lisa Cummins, Roger Pasfield, Kelly Tots Pasfield, AJ Mooney and Stephen Gomm, and join in with the fundraisers on the day.

These fundraising ideas will come from YOU via our Facebook group www.facebook.com/groups/IBDSuperHeroes, as well as some little surprises arranged by us on the day.If you have any ideas on ways to raise money on the day, feel free to pop over to the group and comment on our pinned post at the top off the page.
Group admin, Kelly will be selling ‘Pandora Style’ Charms on the day: Charms in support of C3-IBDSuperHeroes
We will also have a guest speaker coming along from a selected charity Cure Crohn’s Colitis 
*KEEP CHECKING THE FACEBOOK EVENT PAGE FOR UPDATES ON FUNDRAISING ON THE DAY*
WHERE:
The Lounge
40 High Street
Stone
Staffordshire
ST15 8AU

 

Transport links: Nearest station ‘Stone Crown Street’ Railway Approx 5 minutes walk

 
Please take some time to check out the charity here;
Cure Crohn’s and Colitis
“Cure Crohn’s Colitis has the sole objective of raising money to help fund medical research into curing Inflammatory Bowel Disease. 100% of money raised goes directly to the projects we support. 
All members of the charity are unpaid volunteers and no administrative fees are recovered from donations”

You can donate via our JustGiving here: www.justgiving.com/IBDSuperheroesCureCC
OR
You can donate by text using; Cure Crohn’s and Colitis: CCSH90 £3 to 70070
Media/Enquires: IBDSuperHeroes@gmail.com (Corinne/Sahara) 
 ————————————–

 

We are fundraising on behalf of a charity which invests 100% of their donations to medical research. The charity is relatively small so the funds will mean an awful lot to them! We hope you’ll help us by being the big hearts that fight for the little guys!